Merry Christmas

Emma does not get her Christmas Wish

She will stay on the monitor for the next 2 weeks. The doctor downloaded the results from the monitor and saw that she has irregular breathing patterns that may or may not be the reason for her heart rate drops. We are still hopeful that it is due to immaturity and she will grow out of it. If she still has episodes during the next 2 weeks and they see the same irregularity when downloading the monitor again, they will order a scan of her brain stem to determine if there are any issues. Since they did the cranial u/s in the NICU, we don't anticipate they will find any problems.

Santa's visit

They couldn't stay awake for it, but Santa was nice enough to take a picture with James and Emma anyway.

Wired for business

Emma had an appointment with the cardiologist on Friday. The doctor said she looks excellent and couldn't hear any issues in his stethoscope. He put her on a holter monitor for 24 hours because they noticed a slight electrical impulse issue when they ran the holter monitor in the NICU. If the monitor comes back clear, he will release her. If they still see the issue, they will continue to monitor her in the future.

Monday we go to the Pediatric Lung Center so they can download the information from her heart rate monitor. She continues to have episodes (none serious) so I am not sure she will get her Christmas wish to be off the monitor.

James and Emma in their party clothes

Today started out by relaxing and hanging out on the sofa watching the political talk shows.

Emma and James then went to their first Holiday party. It took us 2 hours to get out the door and we had thoughts of not going at all, but we made it and we are glad we did.

Reflux test

We received excellent news yesterday that there is no reflux to James' non-functioning kidney. Sean took him to his procedure and said that he was a trooper. We are waiting for the final report from the doctor.